May 19, 2017

Sauk Rapids Prom 2017

It's been a busy few weeks. With moving, work and Jake being sick I haven't blogged much. I am going to forgo my usual Friday post to blog about two cute kids and their prom. Cool?
This past weekend Mr.J's son had his junior prom. Mr. J, Jake and I met them at Munsigner Gardens to take pictures of them. It was 80 and sunny, a beautiful day for prom. I've never been to the Munsigner and definitely want to go back when it isn't packed with prom kids. The flowers were beautiful but not as beautiful as these two.






I thought this was the perfect time for Mr. J and I to take our first picture together. With how many pictures I take I can't believe after all this time this is our first. 
And one with my boys!
This melts me!

After pictures we headed over to the high school for the grand march. It was fun to see all the kids dressed up. 
They even made the St.Cloud Times

May 17, 2017

My Rare Kid Gets a Rare Muscle Syndrome

I haven't blogged in a week and a half but I have a good reason. Jake was sick. Not just your average run of the mill sick but sick. Warning LONG POST!
It all started Saturday May 6th when Jake was unusually tired. He was not complaining about not feeling well, he just wanted to sleep. Completely out of character for him. I think at one point he stopped what he was doing and said, 'Mom, I just need a nap'. He also didn't have much of an appetite. Then on Sunday he displayed the same behavior. Not really acting sick, just didn't want eat and was really lazy.
 Early Monday morning he woke up with a high fever and cold like symptoms. He said that his head and throat hurt. I stayed home from work with him while he rested. Tuesday morning he work up and still wasn't feeling the greatest but I had to get some work done so I brought him into work with me. He started to complain that his ear was bother him. I decided to bring him into urgent care and sure enough, he had an ear infection. By this time he is in much better spirits and I'm feeling like we might be in the clear. 
Wednesday morning Jake wakes up and can't walk. Of course I think he is being dramatic and wanting to stay home another day. Knowing I HAVE to go to work, I beg him to try to go to school. As he cries in pain, I bribe him with an art project if he can make it through the day. He agrees, because it's an art project and if you know Jake that is his achilles heel. Mind you he is hobbling and complaining about how much his legs hurt. Again, I think he is being dramatic. Not my proudest moment as a parent but how was I to know. 
Throughout the day his special ed teacher was keeping me updated through email how he was doing. He made it to 1 pm when the school called. Jake said that he tried but it hurts so bad he wants to go home. 
After an hour drive from work I arrived at Jake's school. By this point Jake is almost no longer able to walk at all. As I am practically carrying him to the car he says, 'Mom, can I still do my art project? I really tried to make it the whole day'. 
He spent the rest of the day and afternoon on the couch. Only getting up to piggy back ride to the bathroom . I thought to myself that this is the oddest thing and if he still isn't better by the next day I am bringing him to urgent care. 
The next day was worse and Jake couldn't stand and I couldn't touch his calves without him crying from the pain. Urgent care here we come. 
After 3 hours in urgent care they sent us to the ER. 
Jake was in so much pain that they were giving him morphine. When he started barking like a dog and meowing like a cat, the nurse thought he was feeling better. I said, um that is normal behavior for my kid. lol. 

After several hours in the ER(6 to be exact) and lots of blood work it was discovered that Jake had Benign Acute Childhood Myositis a rare muscle syndrome caused by strep. This syndrome causes severe calf pain. Since we were in the ER all day Jake slept comfortably on pain meds and I laid next to him and watched movies. 

The ER doctor contacted Children's hospital of Minneapolis and asked what the course of action should be. Children's hospital wanted him transferred in an ambulance to their hospital to be admitted. I asked if I could drive him because an ambulance ride that far is very costly and he is on pain meds and feeling ok for now. The doctors agree and we packed up and headed to children's. Little did I know that choosing to drive him would be a big mistake. 

When we arrived at Children's hospital I was under the impression that Jake would be admitted right away but because he didn't arrive in the ambulance we were put to the back of the line. 


There was a measles outbreak and then 4 critical cases in a row so we waited 4 hours to get back into the ER. My heart was breaking for Jake because the medicine was wearing off and he was so uncomfortable. By 2 am Jake was admitted and resting comfortably. 


The course of treatment for this rare syndrome is to pump fluids into the body to bring CPK blood enzyme level down to a safe/normal level. When Jake entered the hospital his CPK level was 6500. A normal level for a child is 60-400. Throughout the night and the next day Jake's levels trended down to an acceptable level where he could be released. 


And of course he got to do his art project.



I have major guilt that I didn't give him the benefit of the doubt and was so wrapped up in work that I didn't want to listen to him when he said he was hurting. It was an odd week but I am happy to say Jake is 100%. It came on fast and left just as fast. 

May 5, 2017

What's Up Weekend? May 5th, 2017


Happy Friday!! Linkin' up with my girls from PP, Lindsay, Chrissy and Charlotte. Here is a list of what made me happy this week.


1) After months and months of only seeing Mr. J on the weekends, Jake and I made the move to Our Happy Place. The move went pretty smooth. Thanks to Two Men and A Truck


2. Got the stain out!!




 3. Pizza night!


 4. First attempt at a fathead pizza. It turned out amazing! Even Mr. J liked it. 2 net carbs.


 5. I love the way our creepy trees look at sunset. 

6. Watching Jake play outside. After a year of living in an apartment he is finally free!



7. These two love each other and we just love watching them play. 


 8. Finally all moved in to my new office. Moving houses and moving offices at the same time was a bit stressful but all worth it.


9. Launching a photo hunt with my BFF Kristi. If you would like to participate click here. All you have to do is take picture of the 10 items listed on Kristi's blog throughout the month of May and then share them in a blog post June 1st then linkup. 

10. I posted about Jake's new school earlier this week but I wanted to include this on my list of what made me happy this week. Jake's new school is amazing and he is LOVING IT!! 



What made you happy this week??

May 2, 2017

Jake's New School

If you've stopped by my blog in the past month or so you probably know that Jake and I made the big move to Our Happy Place. My son Jake is visually impaired and requires special services. That being said switching schools mid year is not an easy task. To say that I was more nervous than Jake is an understatement. He is such a happy go lucky kid. He is constantly making me proud with his ability to adapt and overcome obstacles. 

Although we were excited for our new chapter to start at Our Happy Place, we knew that moving meant that Jake would no longer be with his Para Ms. Karla, who he has been with for 2 years. Jake and Ms. Karla have a special bond. She knows him so well. She spent 6 hours a day with Jake and he will miss her. I will miss being able to chat with her about Jake every morning when I drop him off. She is such a kind amazing woman and was born to do this job. 


Jake and Ms. Karla
Becker school was so accommodating to Jake needs. They made sure that his locker was on the end so he could find it and his name was displayed clearly and in red. 


Jake was so excited and didn't show any fear or anxiety on his first day. He made me so proud. I know if it was me I would have been nervous.


When I picked up Jake from school I had a few minutes to discuss Jake's day with his new Para Ms. Rikke. The first thing she said to me was, 'You have an awesome kid on your hands'. She said that the class was asked to write 4 sentences about anything they wanted. After they were all done the teacher asked the class if anyone would like to share what they wrote. Sure enough Jake's hand went up first. He went up in front of the class and this is what he wrote. 
1) I like the color red
2) I have a dog named Cooper
3) I have a cat named Rosa
4) I have a new bed. 
No fear what so ever!


After school he just went to his room. No care in the world. Like this life altering move didn't affect him one bit. Maybe I am a tad dramatic. This Mama was a ball of nerves for nothing. 

Hanging out on the couch with Cooper before bed

Now that we got the first day out of the way, I can relax. Jake moving schools was more stressful on me than the move itself. 

May 1, 2017

KRISTI & KIM’S PHOTO HUNT CHALLENGE MAY 2017

May 2017 list:
  1. Something Bright
  2. A Landscape
  3. Something in season
  4. Black and white
  5. A reflection
  6. A closeup
  7. Something shiny
  8. Colorful
  9. A silhouette
  10. Something wet 
Kristi and I will be hosting a photo challenge. We are going to shoot for every other month. Possibly every month depending on time constants. 
Photo Hunt Challenge Rules:
You must take your photos between May 1st and May 31st.  You ARE allowed (and encouraged!) to use Photoshop  or other photo-editing software as you’d like (it often adds to the artistic
quality of the photo).
It is up to you whether you post your photos on your blog as you go,
or wait until May 31st to unveil them and make it a surprise.  One
thing I ask is that everyone who participates posts all 10 photos in
one single post on their blogs or in a set in an online gallery on
May 31st/June 1st. 
I can't wait to see all your photos. Have fun!!