Aug 10, 2009

Sleep?? What is that??

Sleep is a thing of the past for Brent and me. With B having to work so early and with the baby refusing to sleep, sleep is non existent for us these days. Last night the baby woke at 10 pm and was up every hour after that until 6 am. Brent has to get up for work at 3:30 am so he was a walking zombie at work today. I am on robot mode.

I am not sure if we will ever figure out this sleeping thing with buggy but we are determined to try. His thing is the swaddle. He has a love hate relationship with it. He wants out but then when he is out he wants back in. Tonight I put him in a sleep sack and am attempting to get him to sleep without a swaddle. I know that if I am consistent he will get it down eventually.

His surgery has him all out of sorts. He just started to open his eyes last week which was such a treat considering we really haven't seen his eyes since his surgery on 7/17. He still won't hold his head up. The vision specialist says that it's because he has no reason to look up. We know that he can hold his head up he just doesn't because he can't see anything. We've been to the surgeon twice since his surgery and she said that because she had to remove his lenses his pupils are no longer normal looking. She is not sure if or when they will go back to normal.

Next month he will be put under to have a full exam and to be fitted for glasses. The surgeon said that until he has glasses he will not be able to fix or follow anything. His eyes are 6 months behind on development and his brain doesn't know how to use them so it will be a lot of therapy to teach him. The surgeon is still unsure how well of if he will be able to see. It's all just a waiting game.

We are hopeful and pray everyday. I hope all is well with everyone. Maybe someday soon I will have time to sit down and catch up on all the blogs that I miss so very much and actually get to comment.



Anonymous said...

Hang in there, Kim. Things will get better! I can only imagine how frustrating all the waiting must be and how anxious you are to get started with therapy.

I am attempting to ween Briar off of the swadle (she is getting too big for the blankets) by leaving one arm out for a few weeks, then both arms, and then just wrapping her loser until she doesn't need it anymore. My thoughts are with you guys!

Mary said...

Kim, no matter how hard it is, it will get better! Stay strong! I can't imagine what you must be going through. Saying some prayers for you all!

Kristi said...

Sounds like things have been difficult :( Hopefully the therapy will help Jake, he is a strong baby and will make great strides. Hang in there, give me a call soon....