On June 20, 2009, Jake was diagnosed with a rare genetic eye disorder called Familial Exudative Vitreoretinopathy (FEVR). With this diagnosis it was discovered that Jake has only “light” sight and minimal peripheral vision. On July 16 and 17, Jake underwent double eye surgery to reattach his retinas and remove fluid blockage with the hopes of allowing him the chance to see, at least, shapes and shadows. It will be another 4-6 months before they will know if the surgery was successful. What is known, is that Jake will need extensive eye therapy, glasses and most likely multiple surgeries throughout his life. FEVR is a progressive disorder with no known cure. The only thing that can be certain is that Jake will be fighting for sight for the rest of his life.Kim and Brent have been through so much in such a short time to do what they can to help their little guy.
On September 18 we are hosting a benefit in their honor to help raise money and ease the financial burden they are already facing and that will only continue to face as the years pass.Please join us at the Fridley VFW for a night of food, music and fun to show your support for such a great family.
The evening will include…
For those who have expressed an interest in donating items to the raffle or silent auction, please contact:
Lanee Josephson-Neby 651-785-8204
We would like to have the donations collected by Monday, September 7.Items can be sent directly to Daria at:
936 Mississippi StFridley, MN 55432