It's been a long time since I've posted anything and I wanted to post all the pictures from the past month but our family is going through a hard time right now. At Jake's 4 month check up his doctor felt his eyes didn't look normal and wanted us to see a pediatric eye doctor. At the eye doctor she told us that Jake was pretty much blind and that he had a rare disorder called PHPV. She said that we should be prepared that our son may never see but she wanted us to see a specialist because she said that she's never seen a case like this. We spent 24 hours in hell wondering why this happened and if our son will ever have a normal life. We cried and cried and everything felt like a blur.
Today we went to the specialist and it turns out that Jake has FEVR and not PHPV . She said that with surgery, lots of therapy and glasses Jake will have sight. She said that his sight may never be very good but she is hopeful.
He is scheduled to have surgery on July 16th for one eye and the 17th for the other eye. He will be in the hospital for two days and we will be right by his side.
I will keep you updated with his progress. Please keep my sweet little boy in your prayers.
Kim
7 comments:
Kim - I am so sorry to hear this, but am glad to hear that the condition was found early and that Jake will be getting the treatment he needs. Please let us know if there is anything that can be done for you and your family and know that you all will be in my thoughts.
i am so sorry to hear this. i hope all turns out well. glad to hear that it was caught early. hopefully with some treatment, glasses and therapy...everything will turn out okay.
keep us all posted on what happens.
hang in there!
Thinking of you all Kim!
I'm so sorry that you have to be going through this!
Prayers for your beautiful little boy!
I am so sorry to hear this Kim. Thankfully his doctor noticed this and it was caught early. I hope that will make a difference and Jake will be able to have some vision in life.
My thoughts and prayers are with you and your family.
OMG!!! That is such WONDERFUL news that he can have surgery!!! I really hope that things turn out ok...I know that when I talked to you last things seemd so hopeless...if there is anything that I can help with let me know!!!
~V
So sorry to hear about this. I am glad that there is something they can do to possibly help it. I will be thinking about and praying for your family.
Oh my goodness!! I just found your blog again ( I read a bit when you were pregnant) and I can't believe this! I am so sorry to hear about Jake's vision. I hope that the surgeries will be successful! Hugs!!
Post a Comment