|Had to get a picture outside the plane|
|Jake and Emily getting ready to take off|
Friday night we attended a dinner where we were able to meet a lot of the parents. FEVR is such a rare eye disease so it was amazing to be able to talk to so many different parents that have children just like mine. Jake had a great time at dinner. He has this thing that he does where he goes up to any guy and wants them to pick him up. He pretty much did that most of the night. He played so nicely along side Emily. They had a few different tables set up with different tactile toys for the kids.
|Little Emily. She is soooo funny and smart as a whip.|
|This is Sara. How cute is she!!!|
After the dinner we put the kids to bed and sat in the lounge and talked to a few of the parents. Casey brought her amazing babysitter Heidi and she stayed in with the kids.
I learned so much this weekend. I have so many more questions but I feel like I now know what questions to ask. The parents that we met were amazing. Hearing their stories about their children helped me so much. Before today I felt like I just didn't know the stuff that I should know to be my son's biggest advocate but now I feel I have a way better understanding.
I have to say thank you to Casey for allowing us to fly with her and her family. Casey is an amazing person who Jake and I are lucky to have met. So Casey if you are "stalking my blog" I just wanted to say Thank you for EVERYTHING. I am glad that we had a chance to get to know each other better.
I just wanted to share one more photo of Jake and Emily on the plane ride home. As I'm freaking out because of the turbulence Jake and Emily were having a great time. Me I thought I was going to throw up.